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Видео ютуба по тегу Refsum Disease
Module 6 Participating in Scientific Discussions
Overview of Refsum disease
Refsum Disease Explained: Causes, Clinical Features, Investigations and Treatment
Module 5: Understanding Clinical Trials- How Patients Can Engage
Adult Refsum Disease Research Roadmap
Rare to Recognized: Path to 2030
Module 3: The Role of Patient Registries and Natural History Studies
Module 2: The Role of Patient Collaborators in Research
Module 4: Regulatory Pathways and the Drug Approval Process
Lennon John - Fighting Infantile Refsum Disease
Metabolism part 2 | Refsum disease | Alpha oxidation of fatty acid | biochemistry
Module 1: What is a Patient Collaborator?
Phenylketonuria+Parkinson's disease+Metabolic disorders of glycine+Refsum's disease(1st yr biochem)
Advancing Science for Refsum Disease: Driving Research and Patient Collaboration
Fortschrittliche Wissenschaft für Refsum: Forschung und Zusammenarbeit mit Patienten vorantreiben
Sharon's Story: Why Genetic Testing Can Be Life-changing For People With RP
Refsum Real Talk: Sharon’s Story - Facing Diagnosis, Living with Strength and Hope
Global DARE 2025: Driving Change, Shaping the Future of Refsum
Zellweger Syndrome Explained Causes, Symptoms and Treatment, All Insights
Refsum Disease Explained Causes, Symptoms and Treatment, All Insights
Oren Zarif Pricing | Zellweger syndrome
Alpha Oxidation | Key Concepts & Clinical Defects Explained
Peroxisome, Proteasome, Zellweger, Refsum, Adrenoleukodystrophy for USMLE Step 1 | Page 46 FA | CDA
lecture on | Refsum Disease Explained: Phytanic Acid Metabolism & Clinical Manifestations | MBBS
Refsum disease||Cell diseases||Biochemistry||Lippincott||MBBS||Block 1
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